Related Web Sites

Updated March 12, 2003

Below is a listing of online disability and aging resources we have compiled.  There is a separate section for South Carolina.  If you are looking for services in South Carolina, click on the "Services Database".

A B C D E F G H  I J K L M N O P Q R S T U V W X Y Z

   A

AAUAP - American Association of University Affiliated Programs for each state (now called AUCD)
Administration on Developmental Disabilities
AUCD - Association of University Centers on Disabilities in Reseach, Education and Services (formerly AAUAP)

Abuse
National Center on Elder Abuse

Accessibility

Architectural Accessibility
Abledata - informed Consumer's Guide to Accessible Housing
Access for Disabled Americans
Access for All - detailed information and hands-on examples of how to make workplaces accessible to everyone 
Accessible Housing and Universal Design 
Beyond Barriers - experience in building and remodeling accessible homes; consulting services; reviewing plans and blueprints for residential homes 
Center for Universal Design  
Design Issues in Children's Environments
National Center on Accessibility 
SOAR – Searchable Online Accommodation Resource - explore various accommodations for people with disabilities in the work setting
US Dept. of Housing and Urban Development
  
Electronic and Information Technology
ATAP Section 508 Information Technology Access
Electronic and Information Technology Accessibility Legislation by State
Information Technology Technical Assistance and Training
National Center for Accessible Media
Section 508
US Dept. of Justice - included self evaluation checklist for federal agencies
US Access Board 508 checklist

Hardware, Software and Peripherals
Bavisoft. Software for the blind and visually impaired   audio games powered purely with cd-quality sound imagery
Blindsoftware.com  premiere screen-reader accessible software
IBM Checklist for Hardware design
IBM Checklist - for Software design
IBM Checklist -  for accessible design of closed, self-contained devices
Making Educational Software Accessible
PDF Accessible Documents and Text Conversion Options

Internet/Web Accessibility
Access Board - federal agency dedicated to accessible design; develops standards for accessible information technology
Accessibility Prompt Toolkit
Adobe - helping people with visual disabilities access information in Adobe® PDF; tips and tools for optimizing PDF files for accessibility
American Foundation for the Blind - fact sheet on creating accessible computer applications
AWARE Center - accessible web authoring resources and education
Bobby Accessibility Checker
Center for Accessible Technology
Center for Applied Special Technology
Department of Justice
Designing More Usable Web Sites – Trace Center
Digital Divide
Download HTML Tidy utility
HTML Free on-line course for web accessibility
JAVA Accessibility Quick Tips
JAVA Tutorial - accessibility section
Microsoft's Accessibility Center
National Center for Accessible Media - making educational software accessible; approach to multi-media Web design that facilitates accessibility by viewers with disabilities
PDF Accessible Documents and Text Conversion Options
Usability.gov
WAVE - helps you check if your page is accessible to people with disabilities
WebAim - addresses information accessibility needs of students and faculty in postsecondary settings
WC3’s HTML Validation Service
WC3 Web Content Accessibility Guidelines
Web Page Accessibility Checklist
Web Accessibility Course
Web Accessibility Resources
Web Site Accessibility - tips on accessible web pages from JAN
World Wide Web Consortium (W3C) - World Wide Initiative Accessibility Guidelines
 
Telecommunications
Access Board Telecommunications Accessibility Guidelines
Access Board Technical Bulletin
Accessibility and Emergency Information
Accessible ITM's
Accessible Pay Phones
American Foundation for the Blind
FCC Disabilities Rights Office
FCC Updates
Hearing Aid Compatibility and Volume Controls
Links to Section 255 of the Telecommunications Act
Mobile Phone Guidelines
Procedures for Filing a Complaint
Relay Service
Relay Service - 711 Fact sheet
Section 255
Section 508 Technical Assistance - as it relates to telecommunications
Text Telephone Problems with voice services
Video Programming - closed captioning fact sheet

Web Validation Tools
ATRC
Bobby Accessibility Checker
Temple Accessibility Checker

ADA - see also Laws
ADA Guidelines for Accessible Recreation
ADA Links
ADA Mediation
ADA Technical Assistance Center - ADA Accessibility Guidelines for Buildings and Facilities (ADAAG)
ADA Technical Assistance Agency for SC
Adaptive Center, Inc. - technical assistance for public schools
Buy Accessible
Direct Access - information and services for accommodating employees and customers with disabilities
DREDF ADA Hotline
US Dept. of Justice - enforces the ADA requirements in - Title I: Employment practices by units of State and local government, Title II: Programs, services and activities of State and local government, and Title III: Public accommodations and commercial facilities (private businesses and non-profit service providers).
US Dept. of Housing and Urban Development
Whitehouse - Freedom Initiative

ADA - General Information 
JAN
SEDBTAC
US Dept. Of Justice

ADA Title I - Employment 
JAN
US Dept. Of Justice
EEOC
SEDBTAC

ADA Title II - State & Local Government/Public Transportation 
US Dept. Of Justice
SEDBTAC
DREDF
Federal Transit Administration ADA Home Page

ADA Title III - Public Accommodations 
Access Board
US Dept. Of Justice
DREDF
SEDBTAC

ADA Title IV - Telecommunications 
US Dept. Of Justice
SEDBTAC
Federal Communications Commission - enforces ADA telecommunications provisions
 
ADA and Accessibility in Public schools
ADA National Access for Public Schools Project
ADA Technical Assistance Centers for each state
Disability Resources Directory – Americans with Disabilities Act
National Council on Disability
US Dept. Of Justice ADA Homepage
US Dept. Of Justice Disabilities Page 
 
Advocacy
Abused Deaf Women’s Advocacy Services 
Active Voices in Disabilities
Advocacy Center
Arc of the U.S
Council of Parent Attorneys and Advocates (COPAA)
Disability Advocates Wordwide – TASH
Disability Rights Advocates  
Protection and Advocacy
DREDF
National Health Law Program
National Long Term Care Ombudsman Resource Center

Aging
AARP
AARP Health Options
Access America For Seniors
Administration on Aging - provides information about links related to aging academic research, international sites, and directories related to aging
Administration on Aging - more limited directory of aging related links in key areas
Administration on Aging Fact Sheets
Administration on Aging Center for Communication and Consumer Services
Administration on Aging – Statistics
Aging and Alzheimer’s Disease
Aging Process - numerous links to other age related web sites
AgeNet
Agewell
Aging Resource Centre (ARC)
Alliance for Aging Research
American Association of Geriatric Psychiatry (AAGP)
American Geriatric Society
American Society on Aging
Association for Gerontology in Higher Education (AGHE)
Benefits Check-up
Center for Carolina Living
Census Information for Older Adults
Center for Aging Research and Education
Eldercare Locator
Friendly 4 Seniors - housing, recreation, community resources for seniors
Foundation for Health in Aging (FHA)
Generations on Line 
Gerontological Society of America
Health and Age
Journal of Anti-Aging Research
National Adult Day Services Association – NADSA  
National Association of Area Agencies on Aging (NAAAA)
National Council on the Aging
National Hispanic Council On Aging
National Indian Council on Aging
National Institute on Aging
National Resource Center for Rural Elderly
National Resource Center on Supportive Housing & Home Modifications
National Senior Citizens Law Center
New Lifestyles Online - Lists all state licensed senior housing communities and care agencies nationwide. View online tours, services and amenities or contact the facilities directly with your questions.
Preventing Falls Among Seniors
Primer on Aging
Resource Directory for Older People

Senior Com - seniors "Chat room" and "Senior News Network” 
Senior Corps
Senior Link
Senior Law Home Page - helps older persons, families, attorneys and financial planners to access information about "elder Law"
Senior Net - computers and internet education for seniors and older adults
Senior Sites
United States Senate Special Committee on Aging

ALS (Amyotrophic Lateral Sclerosis)
ALS Association    
 
Alzheimer’s Disease
ADEAR
AoA Alzheimer's Resource Room  
Aging and Alzheimer’s Disease  
Alzheimer’s Association  
Alzheimer's Association (State) - SC
Alzheimer's Association (Upstate) - SC
Alzheimer's Association (Midstate) - SC
Alzheimer’s Web  
 
Amyotrophic Lateral Sclerosis – see ALS  
 
Arthritis
Arthritis Foundation 
 
Assistive Living  
Assisted Living Federation of America

Assistive Technology
ABLEDATA - assistive technology equipment database
Alliance for Technology Access  - network of community-based resource centers
Assistivetech.net
Assistive Technology Projects - Assistive Technology projects for each state
Assistive Technology Software - free demonstrations and time-limited downloads of software for assistive technology
Assistive Technology Solutions - provides plans for Do-It-Yourself devices
Family Center on Technology and Disability
RESNA – Association for the Advancement of Rehabilitation and Assistive Technology
SC Assistive Technology Project
Tech Connections
TechKnowledge
Trace Center - information about research, development, and resources on technology and disability 
University of Buffalo's A to Z Center of Assistive Technology

Attendant Programs  
ADAPT

Autism
Autism Treatment Center of America
Top Ten Autism Resources - type in Autism and get the results; the list changes as readers provide input 
   
   B 
 
Back Pain – see Chronic Pain, Scoliosis and Spine

Behavioral Supports
AAMR Psychology Division Page
American Association on Mental Retardation - select “divisions”, then “Psychology”
American Board of Professional Psychology - go to “member boards”
American Psychological Association
APA MR/DD
Association for Advancement of Behavior Therapy 
Association for Behavior Analysis
Cambridge Center for Behavioral Studies
Positive Behavioral Interventions and Supports
The Earlier the Better

Biomedical
National Library of Medicine - access to world's largest biomedical library, includes consumer health information  
  
Birth Defects
Birth Defect Research for Children
March of Dimes Birth Defects Foundation  
National Birth Defects Prevention Network  
 
Blind - see also Visually Impaired
AFB CareerConnect
American Blind Skiing Foundation  non-profit totally volunteer organization that provides blind children and adults opportunities to build confidence and independence through skiing
American Council of the Blind  
American Foundation for the Blind
American Printing House for the Blind
Bavisoft. Software for the blind and visually impaired   audio games 
Blind Babies Foundation  
Blind Children’s Center  
blindsoftware.com  premiere screen-reader accessible software
Braille Through Remote Learning  
Dotless Braille an introduction to braille for sighted persons and includes new ideas and tools for learning and using braille
International Organization for the Blind  free braille and large print books to the Blind and severely visually impaired. Informative site covering various topics on blindness
Large Print Reviews  publishes reviews of large print and audio books and other items of interest to individuals with low vision, such as screen readers, talking web browsers, and magnifying devices. This site also includes articles related to low vision, eye disorders, and how to adapt to vision loss
National Braille Press Inc. publisher, self-help and computer access braille books and children's braille books
National Federation of the Blind 
National Library for the Blind and Physically Handicapped  
National Organization of Parents of Blind Children  
Recordings for the Blind and Dyslexic  
The 6 Step Method helps VI children learn orientation skills using a cognitive based approach method of teaching orientation and mobility teaches travelers to use attention directing tools to pay attention to the environment, thereby ensuring competent mobility and helping to reduce the anxiety associated with mobility tasks
Vision of Children  works toward the eradication of hereditary childhood blindness, ocular albinism and other blindness
Vision World Wide information, education, guidance and support, not only to the blind and visually impaired, but to the many professionals (medical, social and technical) who serve them
V. I. Guide  provides a comprehensive set of Internet resources for parents and teachers of children with visual impairments
Visual Basic Tutorial For Blind Programmers designed for beginners who want to learn how to program in the Visual Basic Integrated Development Environment (IDE)
. 
Brain Injury 
Brain Injury Association - Brain Injury Associations for each state 
Brain Injury Information Network
Brain Injury Information Page  
Head Injury Hotline  
National Resource Center for Traumatic Brain Injury  
Recovery Awareness Foundation - assists the primary caregiver of people who have suffered a Brain Injury
Traumatic Brain Injury Organization - chat room 
Traumatic Brain Injury Resource Guide - brain functions and map   
 
Brain Tumor – see also Cancer and Clinical Trials
American Brain Tumor Association 
Cerebellar Mutism
Meningioma Support and Information
Skull Base Tumors Public Guestbook

   C

Cancer - see also Brain Tumor and Clinical Trials
CancerCare - free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance
Cancer Clinical Trials
Cancer Fatigue  
Cancer Guide
CancerNet  
Cancerpage
CancerSource  
Make a Wish Foundation
National Childhood Cancer Foundation (NCCF)
National Children's Cancer Society
National Coalition for Cancer Survivorship
National Institute for Cancer - information on clinical trials for cancer
Pancreatica.org

Texas Cancer Center - brings up-to-date information and medical research to your kitchen table and explains treatment options in terms you can understand

Captioning 
Captioned Media Program  
National Captioning Institute
Video Programming

Captioning for Multimedia
Audio descriptions for web-based multimedia
Microsoft SAMI
National Center for Accessible Media
Quicktime
Quicktime, SMIL or SAMI using WGBH MAGpie

Caregivers/Caregiving
Caregiver Magazine  
Full Circle of Love - Information for Caregivers
Guide to Choosing a Nursing Home  
National Association of Home Care
National Caregiving Alliance
National Family Caregiver Alliance  
National Family Caregiver Association
National Family Caregiver Support Center
National Federation of Interfaith Volunteer Caregivers
National Respite Locator 
Nursing Home Compare
Today's Caregiver
Well Spouse Foundation  
  
Care Managers
National Association of Professional Geriatric Care Managers

Cerebral Palsy
United Cerebral Palsy Association  
 
Children - see also Disability and specific disability
Administration for Children and Families
Birth Defect Research for Children
Children with Special Health Care Needs – Title V Programs (state contacts 
Children's Dentists in South Carolina
Children's Health  
Children's Organ Transplant Association
Children with Disabilities
Design Issues in Children's Environments
Dolphin Swim Therapy
Emergency Information Form - for Children with Special Health Care Needs
Exceptional Parent Magazine
Family Resource Center
Family Support and Children's Mental Health - Research & Training Center
Family Village - family-friendly disability resources
KidsClick! - under "Health and Family"
Kids Quest
MUSC Children's Hospital - ask pediatric health questions online
Parent Training and Information Center - in each state (SC)
United Parents Syndicate on Disabilities

Clinical Trials
Cancer Care
Cancer Clinical Trials
CancerNet
Graft-versus-Host Disease
Huntington Study Group 
National Institute for Cancer - information on clinical trials for cancer
National Institutes of Health
Pancreatica.org
Southwest Oncology Group
Virtual Trials   

Closed Captioning - see Captioning
  
Clothing - Accessible
Accessible Threads
Adaptive Clothing
Adaptive Design Apparel
Adrian’s Closet
E.Z. Fit Pattern - for starters who want to try making clothes from patterns
Fashion Ease
Forde’s Functional Fashions
MjDesigns
Personal Touch Health Care Apparel, Inc.
Professional Fit Clothing
Rolli-Modern
Special Clothes for Special Children
Specially for You
Wardrobe Wagon, Inc.

Cockayne Syndrome
Medical College of Wisconsin
Cockayne's Syndrome Handbook
National Center for Biotechnology

Collaboration - see Group Development

Complaints
Complaints Online - federal trade commission providing consumer protection information  
 
Communication Disorders
National Institute on Deafness and Other Communication Disorders
 
Community - see Group Development

Consumer Information
Consumer World
Federal Consumer Information Center  
U.S. Consumer Gateway

Continence
National Association for Continence  
  
Cornelia de Lange
Cornelia de Lange Syndrome Foundation 
 
Cystic Fibrosis
National Cystic Fibrosis Foundation 
 
  
   D
 
Developmental Disabilities Councils - Developmental Disabilities Councils in each state  
  
Deaf
Abused Deaf Women’s Advocacy Services  
Alexander Graham Bell Association for the Deaf  
American Society for Deaf Children
Association of Late Deafened Adults
Better Hearing Institute  
Captioned Media Program  
Council on the Education of the Deaf  
Federal Relay Service  
Gallaudet University  
National Association of the Deaf
National Center for Law and the Deaf
National Deaf Academy  
National Deaf Education Center  
National Institute on Deafness and Other Communication Disorders  
  
Deaf-Blind
American Association of the Deaf-Blind  
A-Z to Deafblindness
DB Link
Deaf Blind Information  
Deaf Blind Manual Alphabet  
Deaf Blindness Web Resources  
Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC)
National Family Association for Deaf-Blind  
National Federation for the Blind, Deaf-Blind Division  
National Information Clearinghouse on Children who are Deaf-Blind  
NTAC - National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind
Sense  
  
Developmental Disabilities – see also Disabilities or the specific condition/disease
Developmental Disabilities Councils in each state  
National Association of Developmental Disabilities Councils
SC Developmental Disabilities Council
Women with Developmental Disabilities  
  
Diabetes
American Diabetes Association  
Juvenile Diabetes Foundation International (JDF)  
National Diabetes Information Clearinghouse (NDIC)  
  
Disability - see also the specific disability
Active Voices in Disabilities
Administration for Children and Families
Administration on Developmental Disabilities  
Alpha One - run for and by people with disabilities to establish living situations; related links 
American Association for People With Disabilities
ArcLink
Cornucopia of Disability Information  
Developmental Disabilities Councils in each state  
disAbility - one-stop online access to resources, services, and information available throughout the Federal government  
Disability Information and Resources  
Disability Link Barn
Disability Resource
Disability Resources on the Internet
Disability Mall
DREDF - Disability Rights Education and Defense Fund
Easter Seals
ERIC
Equal Access to Software and Information  
Family Support America
Family Village - family-friendly disability resources
HalfthePlanet
HealthLink
Independent Living Resources
Institute on Disability Culture
Institute for Disabilities Research and Training, Inc
Justice For All
National Alliance of the DisAbled, Inc.
National Arts and Disability Center
National Association of Developmental Disability Councils (NADDC)
National Center for the Dissemination of Disability Research
National Council on Disability
National Institute of Disability Management and Research
National Organization on Disability
National Rehabilitation Information Center 
Online – Disabilities Information Resources
PACER Center  
Parent Training and Information Center - in each state
Rural Institute on Disabilities
Solutions  
State Councils on Developmental Disabilities
The ARC - of the United States
United Nations Disability Program  
Untangling the Web - Where do I go to get Disability information?
WebABLE
World Association of Person’s with disAbilities
World Institute on Disability 
World Wide Web Disability Links and Resources  
  
Down Syndrome
National Down Syndrome Society  

Drug Assistance - see Medication Assistance

Dwarfism - see Short Stature, Growth Disorder

Dyslexia
Children and Adults with Attention Deficit Hyperactivity Disorder - CHADD
Dyslexia the Gift  
International Dyslexia Association
Orton Society
Recordings for the Blind and Dyslexic 
 
Dystonia
Dystonia Bulletin Board Support Group
Dystonia Foundation
International Dystonia On-Line Support Group
National Spasmodic Dysphonia Association

   E
 
National Easter Seal Society  
  
Early Childhood
National Center for Early Development and Learning 
  
Early Intervention
BabyNet South Carolina’s early intervention program
Family Village
Early Intervention Site
Federal Interagency Coordinating Council - resources for Infants and Preschoolers with Disabilities
Zero to Three  
  
Education - see also Gifted and Higher Education
American Council on Education - Information for students with Disabilities
Barrier Free Education
BigChalk - learning Resources on Web. For parents and teachers; access to Central location providing 10,000 pages dedicated to learning. Each site has been evaluated by scholars, then categorized by subject area and grade level
Center for Aging Research and Education
ERIC
FAPE
Federal Education Agency
Gateway to Educational Materials - teachers, parents, and students can access
Homeschooling Children with Special Needs
Internet - an inclusive magnet for teaching all students
Making Educational Software Accessible
National Access for Public Schools projects
National Association for the Education of Young Children - NAEYC
National Association of State Directors of Special Education
National Center on Accessing the General Curriculum (NCAC)
National Center to Improve the Tools of Educators - for individuals with disabilities
National Clearinghouse for Professions in Special Education
National Transition Alliance for Youth with Disabilities
NICHCY -  clearinghouse of information on special education and disability
PACER
Positive Behavioral Interventions and Supports
School Grants: K-12
South Carolina Department of Education
Special Education Resources on the Internet
Special Needs Web Links - for the special education teacher and student
US Department of Education - agencies from across the Federal government joined forces to provide Federal Resources for Academic Excellence, which makes hundreds of education resources available on the web for teachers, students, or parents.
Wright’s Law - articles, cases, newsletters, and other information about special education law and advocacy  
  
Employment - see also Veteran
Able to Work  
Access for All - detailed information and hands-on examples of how to make workplaces accessible to everyone
AFB CareerConnect
American Association for People With Disabilities  
America's Job Bank  
Cornell University’s School of Industrial & Labor Relations Program on Employment and Disability
disability Online - Dept. of Labor - Ticket to Work and Work Incentives
Equal Employment Opportunity Commission
Job Accommodation Network
Job Seekers
Key Materials for the ONE STOP Centers
National Center on Workforce and Disability/Adult (NCWD)
Occupational Employment and Wage Estimates
Office of Disability Employment Policy Publications
Office of Personnel Management - people with disabilities in the Federal Government
Presidential Task Force on Employment of Adults with Disabilities
SC Jobs Now - South Carolina's Statewide Job Market (SC)
SOAR – Searchable Online Accommodation Resource - explore various accommodations for people with disabilities in the work setting
Social Security Administration Work Site - Office of Employment Support Programs
U.S. Dept. of Justice
U.S. Dept. of Labor
U.S. Work Force  
Veterans' Employment and Training Service (VETS)
Veteran Employment Assistance
  
End of Life - see also Hospice
Innovations in End-of-Life Care
Last Acts Campaign

Environmental Illnesses
Birth Defect Research for Children  
HEAL (Human Ecology Action League) - for persons with environmental illnesses
  
Epilepsy
American Epilepsy Society
Epilepsy Canada
Epilepsy Foundation of America  
  
Estate Planning
Estate Planning for Persons with Disabilities - NICHCY
MedSupport – Disability and Estate Planning Trusts, Wills and Estate Planning – Rare Genetic Diseases in Children  
 
Exceptional Children - see Gifted Children
   
   F
  
Facial Reconstruction
National Foundation for Facial Reconstruction  
  
Faith Based Initiatives
Center for Faith-Based & Community Initiatives

Family - see also Caregiver
Administration for Children and Families
Beach Center on Families and Disability
Families USA
Family Caregiver Alliance
Family Resource Center
Family Support America
Family Village - family-friendly disability resources
Family Voices  
Institute for Family-Centered Care
MUMS: National Parent to Parent Network
National Center for Family Support
National Parent Network on Disabilities  
Parent Training and Information Center - in each state  
United Parents Syndicate on Disabilities

Family Centered Care
Answers 4 Families
Family Centered Care
Family Centered Care - USC
Family Reunion
National Family Caregiver

Fathers
Fathers Network
National Center for Fathering
FatherNet

Federal Government
Access America For Seniors
Access Board
Administration for Children and Families
Census Bureau
Centers for Medicaid and Medicare Services - CMS (formally Health Care Financing Administration (HCFA) - information about Medicaid, Medicare and State Children’s Health Insurance Plan
disAbility - one-stop online access to resources, services, and information available throughout the Federal government
Disability Direct
Federal Agencies
Federal Agency for Healthcare Research and Quality
Federal and State Benefits
Federal Communications Commission (FCC)
Federal Consumer Information Center
Federal Government - First Gov - all online resources offered by the Federal Government
Federal Government on the Web - how to easily access
Federal Government TTY Directory
Federal Internet Sites
Federal Statistics - provides the public a single point of entry to 40 Federal statistical programs
First Gov for Seniors
Forms from the Feds - Uncle Sam
Government Benefits
Government Publications on Disabilities
Health Care Financing Administration - now CMS (Centers for Medicaid and Medicare Services)
Health Finder
Health Finder in Spanish
Medicare  
National Institutes of Health
Occupational Employment and Wage Estimates
Poverty Guidelines
Small Business Administration - start your own business. Offers everything from loans to outreach initiatives for women and minority-owned businesses. The site also provides e-mail counseling and mentoring, online educational courses, and a database of federal, state and private contracts available to small firms.
Social Security Administration
Transit
US Congress
US Dept. of Education
US Dept. of Housing and Urban Development (HUD) - comprehensive homebuyer's kit, complete with searchable databases of HUD homes for sale, condominiums and developments approved for FHA financing, and HUD approved lenders
US Dept. of Veteran’s Affairs - find the Veterans' Medical Center nearest you; find out what benefits you may qualify for, with help from the Department of Veterans' Affairs
US House of Representatives
US Senate
US Senate Special Committee on Aging
Vocational Rehabilitation Programs listed for each state
Whitehouse - Freedom Initiative
White House Website  
  
Fetal Alcohol
Alcohol Related Birth Injury
(FAS/FAE) Resource Site  
FASlink
Fetal Alcohol and Drug Unit
Fetal Alcohol Syndrome
Fetal Alcohol Syndrome Family Resource Institute
  
Fragile X
National Fragile X Foundation  
  
Fibrodysplasia
Fibrodysplasia - Guidebook for Children
International Fibrodysplasia Ossificans Progressiva Association  
  
Functional Electrical Stimulation - FES
FES Information Center   

   G
Gaucher Disease
Albany Medical Center - online screening questionnaire to determine eligibility for free
Gaucher disease testing; links to other Gaucher disease web sites
Gaucher Disease: Current Issues in Diagnosis and Treatment – NIH
Gaucher Disease Treatment Program
National Gaucher Disease Foundation

Genetics
Alliance of Genetic Support Groups
Johns Hopkins Genetics Research 
National Society of Genetic Counselors
Rare Genetic Diseases in Children
Trusts, Wills and Estate Planning – Rare Genetic Diseases in Children  
  
Geriatrics - see Aging  
  
Gifted Children 
Educators of Gifted, Talented, and Creative Children in B.C.
ERIC - Clearinghouse on Disability & Gifted Education  
Gifted-Children.com - (GCC) is an on-line parents' newsletter with networking and information dedicated to making a difference in the education of children with special talents and abilities
Gifted Children - Parenting K-6
GT World - on-line support community for parents of Gifted and Talented children
Highly Gifted Children in Full Inclusion Classrooms
Hoagies' Gifted Education Page 
Joy and Loss:The Emotional Lives of Gifted Children
Mis-Diagnosis and Dual Diagnosis of Gifted Children
Parent Resources for Gifted Children
Schools and Programs For Gifted, Talented and Motivated Children
State Gifted Education Associations
Supporting Emotional Needs of the Gifted (SENG) focuses primarily on the adults in the lives of gifted children
Teacher Resources for Teaching the Gifted Child
The Association for the Gifted (TAG) - a division of The Council for Exceptional Children organized to help both professionals and parents deal more effectively with the gifted child
The Council for Exceptional Children (CEC) 
The Gifted Development Center serves parents, schools, and advocacy groups with information about identification, assessment, counseling, learning styles, programs, presentations, and resources for gifted children and adults
The Gifted Resources Home Page 
The National Association for Gifted Children (NAGC) 
The National Parent Information Network (NPIN) 

Glaucoma
Glaucoma Research Foundation  

Government - see Federal Government
  
Graft-versus-Host Disease
Graft-versus-Host Disease – discussion group
Graft-versus-Host Disease – clinical trials  
  
Grandparents
AARP Grandparent Information Center
Child Welfare League of America
Grandparents Raising Grandchildren:  Where to Find Help
Kinship Care of Abused, Neglected, and Abandoned Children
National Center on Grandparents and other Relatives Raising Children
Nurturing Grandparent
State Polices for Assessing and Supporting Kinship Foster Families
Statistics on Grandparent Caregivers
Tax Information for those raising grandchildren

Grass Roots - see Group Development

Group Development
American Network of Community Options and Resources (ANCOR)
Teambuilding, Inc.
GRASS-ROOTS.ORG
The Center for Community Change
The Citizen's Handbook
Paper on Community Organizing:People Power from the Grassroots

Growth Disorders - see also Short Stature
Dwarfism
Human Growth Foundation 
Magic Foundation

   H
Health
AARP Health Options
American Academy of Family Practice
American Medical Association  
America's Doctor - free, private chats with online Doctors, 24 hours a day
Ask Dr. Weil
Association for the Care of Children's Health (ACCH)
Black Health Network
Centers for Disease Control
Dr. Koop - health and medical information from former Surgeon General Dr. C. Everett Koop
Federal Agency for Healthcare Research and Quality
Find a Doctor - AMA physician select on-line doctor finder
Foundation for Health in Aging (FHA)
Harvard Medical School Family Health Guide
Health A to Z
Health and Age
Health and Well Being - a well-being site aimed primarily at women
Health Answers
Health Care Financing Administration (now called Center for Medicaid & Medicare Services - CMS)
Health Finder - tips on choosing a health plan, a doctor, a course of treatment, or a long-term care facility. Also provides information on the latest health research on different illnesses
Health Information for Spanish Speaking Consumers
HealthGate
HealthLink
Health Scout
Kids Health
Lookup Medical Information - Mayo Clinic Health Oasis
Mayo Clinic - health headlines; also allows users to e-mail questions to physicians
Medhunt - U.S. government- sponsored site with 14,000 links to health sites
MedicineNet
MedLine
Medscape - for reports and journal articles
Medscape Health
Merck Manuals
Minority Health
MUSC Children's Hospital - ask pediatric health questions online (SC)
National Health Information Center
National Health Law Program
National Institutes of Health - gateway to resources of US agencies, including diseases being studied by institutes
National Library of Medicine - MedLine access to world's largest biomedical library, includes consumer health information
National Women’s Health Information Center - includes links to specialty sites
New England Journal of Medicine
Quackwatch - the truth behind the latest health scares, legends, rumors and hoaxes
RealAge
Thrive on Line  
Web M.D. - health news and information, physicians Directory, and support groups
Wellness Web   

Hearing - see also Deaf
Better Hearing Institute, Hearing Helpline
Hard of Hearing/Deafened Forum
Hearing Industries
Hear-It
Search Wave - audiology search engine
Self Help for Hard of Hearing People - information about hearing loss and hearing impairment

Heart
American Heart Association - information about heart health  
Heart Health
  
Higher Education
Association for Gerontology in Higher Education (AGHE)
Association on Higher Education and Disabilities
HEATH - national clearinghouse on post secondary education for people with disabilities
Information Access Technologies, Opportunities, Education
National Association for College Admission Counseling - for students with learning disabilities interested in college
National Center for the Study of Post Secondary Educational Supports
PEPNET - for deaf and hard of hearing
Student Financial Assistance from the US Department of Education
WebAim - addresses information accessibility needs of students and faculty in postsecondary settings  

Hispanic Resources
National Hispanic Council On Aging

Homeschooling
A to Z Home's Cool Homeschooling
Homeschooling Children with Special Needs

Hospice - see also End of Life
American Academy of Hospice andPalliative Medicine
American College of Physicians Home Care Guide for Advanced Cancer 
Americans for Better Care of the Dying  
Hospice Foundation of America
Innovations in End-of-Life Care
National Hospice and Palliative Care Organization
Partnership for Caring: America's Voices for the Dying

Housing
American Association of Homes and Services for the Aging
National Association Hospital Hospitality Houses, Inc.
National Home of Your Own Senior Housing Net
National Resource Center on Supportive Housing & Home Modifications
US Dept. of Housing and Urban Development (HUD) - comprehensive homebuyer's kit, complete with searchable databases of HUD homes for sale, condominiums and developments approved for FHA financing, and HUD approved lenders  
  
Huntington's Disease
Huntington's Disease - medical resources, events conferences, donations information, and other related information about Huntington's disease  
Huntington Study Group 

Hypopigmentation
National Organization for Albinism & Hypopigmentation 
 
  
   I

Immune Defiency  
Immune Deficiency Foundation  
  
Inclusion
All Means All
All Means All Checklist for Meeting the Needs of All Learners
National School to Work Resource Center
Partnership Documentation & Reporting System

Independent Living
Independent Living Centers listed by State
Independent Living Research Utilization
Independent Living USA
Institute on Independent Living  
  
Indian Resources - see Native American

Injury Prevention
National Center for Injury Prevention and Control
Preventing Falls Among Seniors

Insurance
Centers for Medicaid and Medicare Services - formerly HCFA - information about Medicaid, Medicare and State Children’s Health Insurance Plan 
Long Term Care Insurance Information - Consumer Law Page
Long Term Care Insurance Information - AARP
Long Term Care Insurance Information - National Advisory Council
Long Term Care Insurance Information - American Health Care Association
Long Term Care Insurance Information - USHC
 
Intergenerational
Generations United
 
   J
  
Jobs - see Employment

Juvenile Diabetes – see Diabetes 
   
   K
  
Krabbes-Disease
GeneClinic 
Hunter's Hope - Jim Kelly's Foundation - organization devoted primarily to Krabbe's Disease
Krabbes Family Network - resources for families with Krabbe affected children.
National Institute of Neurological Disorders - Krabbe Disease Information Page
National Organization for Rare Disorders - many pages on Krabbe. When page loads, run search on "krabbe".
United Leukodystrophy Foundation - foundation devoted to all Leukodystrophies.

   L
  
Language
American Speech-Language-Hearing  
  
Law(s)/Legal - see also ADA
Air Carrier Access Act
Architectural Barriers Act
Ask-A-Lawyer - SC only
Assistive Technology Act
Bazelon Center for Mental Health Law
Civil Rights of Institutionalized Persons Act (CRIPA)
Council of Parent Attorneys and Advocates (COPAA)
DHHS Office of Civil Rights (Olmstead Links)
Disability Rights Education and Defense. Fund Inc.
Elder Law Net Work
Fair Housing Act
Federal Disability Laws
Federal Laws and Regulations
Find A Lawyer
Findlaw
Guide to Disability Rights Laws - Includes: Americans with Disabilities Act; Fair Housing Act; Air Carrier Access Act; Civil Rights of Institutionalized Persons Act; Individuals with Disabilities Education Act; Rehabilitation Act; Architectural Barriers Act and other Sources of Disability Rights Information
IDEA (Individuals with Disabilities Education Act)
Motor Voter Act
National Association of Elder Law Attorneys
National Health Law Program
National Senior Citizens Law Center
Older Americans Act
Olmstead
Section 504 of the Rehabilitation Act
Section 508
Senior Law Home Page - helps older persons, families, attorneys and financial planners to access  information about "elder Law"
Telecommunications Act
Workforce Investment Act of 1998 – A Primer for People with Disabilities

Law Enforcement
Law Enforcement Agencies in South Carolina
Law Enforcement and Autism  
Oregon Cop Project  
  
Learning Disabilities
ABA Materials - CD-ROMs with color images that parents print as flash cards to teach children with learning disabilities
Internet Special Education Resources
LD OnLine
LD Resources
Learning Disabilities Association
National Adult Literacy and Learning Disabilities Center
National Center for Learning Disabilities, Inc.  
  
Legal - see Law and Advocacy

Leukemia
Leukemia Society of America

License Plate/Placard (handicapped) form for SC 
Handicapped License Plate/Placard form for SC

Literacy
Family Literacy
Literacy Volunteers of America, Inc.
National Adult Literacy and Learning Disabilities Center
National Center for the Study of Adult Learning and Literacy
National Institute for Literacy  
  
Little People – see Short Stature  

Long Term Care - see also Nursing Home
AARP Health Options
Long Term Care Insurance Information - Consumer Law Page
Long Term Care Insurance Information - AARP
Long Term Care Insurance Information - National Advisory Council
Long Term Care Insurance Information - American Health Care Association
Long Term Care Insurance Information - USHC
Long Term Care Insurance Programs
Long Term Care Options 
National Long Term Care Ombudsman Resource Center

Lou Gerhig’s Disease – see ALS  
  
Lowe's Syndrome
Lowe's Syndrome Association  
  
Low Vision – see also Blind, Visual Impairment
Low Vision Gateway
  
Lupus
Lupus Foundation of America 
   
  M

Maps
MapsOnUs
MapQuest

Mediation
ADA Mediation

Medicaid
Centers for Medicaid and Medicare Services - CMS (formally Health Care Financing Administration (HCFA) 
Medicaid - now Centers for Medicaid and Medicare Services (CMS)
Medicaid for South Carolina

Medical - see Health

Medication Assistance - see Prescriptions
  
Medicare
Centers for Medicaid and Medicare Services - CMS (formally Health Care Financing Administration (HCFA) learn about your Medicare benefits, get information about home and community-based services, or report suspected Medicare fraud through the Health Care Financing Administration's web page. Also provides an on-line version of the Medicare & You handbook.  
HCFA/DHHS
Medicare Rights Center
National Committee to Preserve Medicare & Social Security
Senior Medicare Patrols

Mental Health
American Psychological Association
Bazelon Center for Mental Health Law
Center for Mental Health Services Knowledge Exchange Network
Depression Screening
Family Support and Children's Mental Health - Research & Training Center
Federation of Families for Children's Mental Health
Help Center – American Psychological Association
Mental Health Net
National Alliance for the Mentally Ill
National Institute of Mental Health  
National Mental Health Association
National Mental Health Knowledge Exchange Network  
 
Mental Retardation
American Association for Mental Retardation
Arc of the U.S
President’s Committee on Mental Retardation  
   
Military - see also Veteran
Tricare - serves the Federal Community in Washington, DC and the Department of Defense community in accommodating employees with disabilities  
  
Muscular Dystrophy
Muscular Dystrophy Association  

Multimedia Captioning - see Captioning for Multimedia
  
Multiple Sclerosis
MSActiveSource
MS Watch
National Multiple Sclerosis Society 

    N
  
Native American Resources
Association Of American Indian Physicians
Center for American Indian Health, Johns Hopkins School of Public Health
Division of Tribal Services, Office of Community Services, Administration for Children and Families, Dept. of Health and Human Services
"If you knew the conditions . . ." Health Care to Native Americans
Indian Health Service
Living Healthy in Native America
National Indian Council on Aging
Native American Women's Health Education Resource Center
Native Elder Health Care Resource Center, University of Colorado Health Sciences Center
National Resource Center on Native American Aging, Univ. of North Dakota
The Pima Indians - Pathways to Health
Tribal Child Care Technical Assistance Center

Neurofibromatosis
Neurofibromatosis, Inc.  
 
Nursing Homes
How to Choose a Nursing Home
Long Term Care Options
Nursing Home Compare

Nutrition
National Association of Nutrition and Aging Services Programs

Nystagmus
Nystagmus Network 
   
   O
Olmstead
ADA's Most Integrated Setting, the Olmstead Decision
Most Integrated Setting - The Olmstead Decision
National Supported Employment Consortium: Self-Determination and Employment-
Olmstead
Olmstead Letter to State Medicaid Director
Oregon Self Determination Project Summary 
Project News on the NH Self- Determination Project
Sample Olmstead Letter to Governors
South Carolina Olmstead Information
Texas Self Determination Project Summary  
University of Minnesota, Institute on Community Integration

Osteogenesis Imperfecta
Osteogenesis Imperfecta Foundation 
   
   P
  
Pain - see Chronic Pain  
  
Parents/Parenting - see also Families
Facts for Families – American Academy of Child and Adolescent
Family Village - family-friendly disability resources
Psychiatry 
Parenthood Web
Parent Resources for Gifted Children
Parent Training and Information Center - in each state
Parenting Resources for the 21st Century
United Parents Syndicate on Disabilities

Post-Secondary Education - see Higher Education

Prescriptions and Prescription Assistance
American Society of Consultant Pharmacists
Drug InfoNet
DrugInfoZone
Generic Drugs:  The Unadvertised Brand
IntelliHealth
Lilly Answers Card
Medicare Prescriptions
Medication Assistance Program
MedicineNet
Merck Manuals
Needy Meds - pharmaceutical manufacturers that help people who can’t afford to buy the drugs they need; also includes information on drug interactions 
Novartis Care Card
PDR.net
Pharmaceutical Assistance Programs
Prescription Assistance Program - for physicians only
RX: List - internet drug index
The Medicine Program
Together RX Card  

Prevention
Centers for Disease Control and Prevention  
  
Protection and Advocacy
National Association of Protection and Advocacy Systems Protection & Advocacy Centers for each state
Protection & Advocacy - SC
 
   Q 
  
   R
  
Rare Disorders
RareDiseaseTravel
Rare Genetic Diseases in Children  
  
Recreation and Leisure - see also Sports and Veterans
Ability Camp - therapy sessions for children with motor disorders
Access-Able  
Accessible Journeys 
Accessible Playgrounds
Accessible Vacation Homes Travel Guide
American Blind Skiing Foundation  non-profit totally volunteer organization that provides blind children and adults opportunities to build confidence and independence through skiing
Association for Leisure and Recreation
Camp Little People
Disability Access Travel Guide
Disability Radio Worldwide
Disability Travel and Recreation Resources
Dolphin Swim Therapy
Flying Wheels Travel
Free Access Guides
Gimp on the Go
Global Access Disabled Travel Network
Half the Planet
Mini Trotters
National Arts and Disability Center
National Center on Accessibility - technical assistance for designing/retrofitting leisure areas and programs for accessibility
National Center on Physical Activity and Disability
National Council of State Tourism Directors
National Library Service for the Blind and Physically Handicapped
Open Directory Project
Project Action Accessible Traveler’s Database
Recordings for the Blind and Dyslexic
Society for the Advancement of Travel for the Handicapped (SATH)
Special Olympics
The Access-Able Travel Source
Tips 4 Trips
Travelin’ Talk
Trips, Inc - Special Adventures
Very Special Arts
Wheelchair Sports, USA
Without Wheels

Rehabilitation (see also Vocational Rehabilitation)
American Rehabilitation Counseling Association
International Association of Rehabilitation Professionals
SC Vocational Rehabilitation Department
Vocational Rehabilitation Programs listed for each state

Research - see Statistics

Respite
National Respite Network & Resource Center
Respite Checklist

Rural Resources
National Resource Center for Rural Elderly

   S
  
Scholarships (Educational)
ScienceWise for Deaf and Hard of Hearing students  
Summer Internships - $10,000 plus paid summer internship
  
Scoliosis
HealthLink USA – Scoliosis
National Scoliosis Foundation
New York Spine Team
Scoliosis Research Society
Scoliosis Treatment
Spine Health
Spine Universe
Texas Back Institute  

Section 508 - see Laws and ADA (Electronic and Information Technology)

Self Determination - see Olmstead

Senior Information - see Aging

Shoes
Amputee-Shoe-Exchange - Shoe exchange for Amputees and others with shoe size differences
Markell Shoe Company  This company offers orthopedic footwear, appliances, and orthotic devices
Mismatched and Single Shoes
One Shoe Crew - This organization maintains a computer database and a stock of extra single shoes.
Odd Shoe Exchange
Shoe Search -The National Shoe Retailers Association maintains this database to allow one to search by zip code or area for shoes in special sizes and/or widths.

Short Stature – see also Growth Disorder
Billy Barty Foundation
Camp Little People
Diastrophic Dysplasia
Dwarfism
Little People of America  
Magic Foundation
Mini Trotters

Shriner's Hospital for Children
Shriner’s Hospital for Children

Shwachman-Diamond Syndrome
Shwachman-Diamond Syndrome

Siblings
Sibling Support Project

SIDS - see Sudden Infant Death Syndrome

Sleep Apnea
Sleep Apnea 

Small Business
Small Business Administration - start your own business. Offers everything from loans to outreach initiatives for women and minority-owned businesses. The site also provides e-mail counseling and mentoring, online educational courses, and a database of federal, state and private contracts available to small firms.  

Social Security
National Committee to Preserve Medicare & Social Security
Social Security latest news about Social Security Benefits  
Social Security Administration - begin planning for retirement by computing your estimated Social Security benefits online. Provides information on obtaining a Social Security number as well as information for employers on reporting earnings.
  
South Carolina Resources
ADA Technical Assistance Agency for SC
Adult Day Care Centers
Alzheimer’s Resource Coordination Center (ARCC)
Ask-A-Lawyer - SC only
Assistive Technology Project
BabyNet South Carolina’s early intervention program
Bureau of Long Term Care Services (LTC)
Bureau of Senior Services (BoSS)
Capital Senior Center
Center for Carolina Living
Child Find
Children's Dentists in South Carolina
Coastal Carolina University Certificate Program in Gerontology
Collaborative Resource Library
Family Connection of South Carolina
Governor Mark Sanford
Handicapped License Plate/Placard form for SC
Head and Spinal Cord Injury DDSN-(HASCI Division)
Honorable Earnest F. Hollings
Honorable Lindsey Graham
Law Enforcement Agencies in South Carolina
Mature Adult Count for South Carolina
Medicaid for South Carolina
Office of Senior and Long Term Care Services
MUSC Children's Hospital - ask pediatric health questions online (SC)
PALS
Pro Parents
Protection & Advocacy - SC
Research and Statistics (SC Budget & Control Board)
Richland County Information
SCIway - South Carolina’s Information Highway
Senior Resources
South Carolina – Toll-Free Telephone Numbers
SC Assistive Technology Project (SC ATP)
SC Association of Residential Care Homes
SC Autism Society
SC Center for Gerontology
SC Department of Education  (SC DOE)
SC Department of Disabilities & Special Needs (DDSN)
SC Department of Health and Environmental Control (SC DHEC)
SC DHEC Licensed Adult Day Care Centers
SC DHEC Home Health and Long Term Care - 
SC Department of Health and Human Services (SC DHHS)
SC Developmental Disabilities Council (SC DDC)
SC Employment Security Commission (SC ESC)
SC General Assembly
SC Geriatric Education Center
SC Health Alliance - many SC hospitals
SC Health Care Association (Nursing Homes)
SC History
SC Hospital Association
SCJobsNow - South Carolina's Statewide Job Market
SC Legislative Information
SC Medical Association
SC National Association of Social Workers
SC Nurses Association
SC Organ Procurement Agency (SCOPA)
SC Spinal Cord Injury Association
SC State Office of Victims Assistance 
SC Vocational Rehabilitation Department
State Agencies in South Carolina
State Library - SC
Tax Information - SC
Tricounty Resource Directory

Special Education - see also Education and Higher Education
Barrier Free Education
Council of Parent Attorneys and Advocates (COPAA)
Internet - an inclusive magnet for teaching all students
Making Educational Software Accessible
NTAC - National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind

Spine - see also Spinal Cord Injury
Spine Health
Spine University at Colorado Springs 
Shepherd Center
South Carolina Spinal Cord Injury Association
Spinal Cord Research Centre
Spinal Cord Injury Resource Center
Spinal Cord Society
Spinal Cord Injury Information Network
University of Alabama's - SCI information Network
Wheel Web  

Spinal Cord Tumor
Spinal Cord Tumor Support

Sports - see also recreation and Veterans
America’s Athletes with Disabilities
National Disabilities Sports Alliance
National Sports Center for the Disabled
National Veteran’s Wheelchair Games
PVA National Trapshoot Circuit
Wheelchair Sports & Recreation Assoc.
Wheelchair Sports, USA
US Quad Rugby Association

Statistics
Administration on Aging – Statistics
Alliance for Aging Research
Census Bureau – Disability Statistics
Census Information for Older Adults
Center for Information Technology Accommodation - provides federal agencies data about information technology
Community Health Statistics - health status snapshot of all 3,082 US counties
County Population Estimates
Disability Data
Disability Statistic Center
Federal Statistics - provides the public a single point of entry to 40 Federal statistical programs.
Grandparent Caregivers
Health Resources Services Administration - data on your residents' health status, ability to access health care and causes of death. National averages are given for state comparisons
Health Statistics
Journal of Anti-Aging Research
KIDS COUNT
Mature Adult Count for South Carolina
National Center for Health Statistics
Profile of Older Americans
Research and Statistics (SC Budget & Control Board)
US Government Bureau of Census

Sturge-Weber
Sturge-Weber Foundation

Stuttering
National Center for Stuttering
  
Sudden Infant Death Syndrome
American SIDS Institute
Heavens Angels 
SIDS Alliance
SIDS: Back to Sleep Campaign
SIDS Global Strategy Task Force 
SIDS International 
SIDS Network
SIDS/OID Information and Counseling Program 
SIDS Resource Center
What is Sudden Infant Death Syndrome (SIDS)? 

   T
  
Taxes
Tax Incentive Packet for the ADA
Tax Information for those raising grandchildren
Tax Relief for children with special needs - tax deduction for parents of children with chronic illnesses to attend conferences related to their child’s condition (registration fee, transportation, etc.)  
  
TBI -  Traumatic Brain Injury - see Brain Injury  
  
Team Building - see Group Development

Technology - see Assistive Technology

Teens – see also Youth
Ability online Support Network - electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors; resource for families and friends anxious to know more about an illness and help manage it
Internet Teen Chat room
National Information Center for Children and Youth with Disabilities (NICHCY)
Youth Resource Directory
Transition
Academy for Educational Development
Council of Chief State School Workers
National Alliance of Business
National Association of State Directors of Special Education
National School to Work Resource Center
National Transition Alliance
National Transition Network – Institute on Community Integration
Teaching Specific Skills Allows Youth to Take Charge of Their Own Transition Planning
Transition Research Institute

Transplants
Bone Marrow Test  
BMT
Children's Organ Transplant Association
GeneScreen, Inc.
Gift of Life Transplant Support Fund
Infonet Blood and Marrow Transplant Information Network
National Bone Marrow Transplant Link  
National Foundation for Transplants
South Carolina Organ Procurement Agency (SCOPA)
Transplant Assistance Fund
Transplant Recipients International Organization, Inc. - (TRIO)
United Network of Organ Sharing - (UNOS)

Transportation
Air
Access Board - Architectural and Transportation Barriers Compliance Board; sets guidelines on accessibility standards
Aircare Alliance and the National Patient Air Transport Helpline (NPATH)
Air Carrier Access Act
Airlifeline
Airline Travel Restrictions for People with Disabilities
Federal Transit Administration
Lifeline Pilots
Mercy Medical Airlift
National Patient Travel Center
National Transit Resource Center – Community Transportation Association
RareDiseaseTravel

Traumatic Brain Injury -TBI - see Brain Injury  

Travel – see Recreation and Leisure and Transportation

Trisomies
S.O.F.T. - Support Organization for Trisomy 18, 13 and related disorders  
  
Tourette Syndrome
National Tourette Syndrome Association  
  
Tuberous Sclerosis
Tuberous Sclerosis Alliance 

Tumors - see Brain or Spinal Cord Tumor
 
Turner Syndrome
Turner Syndrome Society
 
   U